VITILIGO PREVALENCE IN THE WORLD:

>3% *from 1 to 8% depending on region prevalence
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Let’s find vitiligo cure together! Take our survey and check anonimous results now!
Vitiligo survey
  • 50 questions
  • kept confidentiality
  • 500+ people already answered
  • keep up with the most advanced research
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Vitiligo Survey

Dear Volunteer:

Your answers to this quick survey will provide life-changing opportunities for yet unknown number of people, estimated at dozens of million people worldwide.

At non-profit VR Foundation we support collaboration across borders, cultures, companies, and disciplines. With the right approach, investigators, doctors, patients and companies could cross fertilize and find effective solution.

This survey is a research study designed to gather information regarding vitiligo worldwide.

Vitiligo is an under-investigated disease resulting in milky white skin patches on the skin. People who are of the legal age at their country of residence may participate in this survey. If your are under age of 13, please do not participate in the survey.

We will collect, analyze and report study results, provided that such information is de-identified and not traceable to any particular user. Study data will be stored at the Vitiligo Research Foundation

1, Penn Plaza, #6205 New York, NY, 10119, USA
1-855-966-3555

If you have any questions regarding this study, please contact us at support@vrfoundation.org or call.

Together, we will expedite the end of suffering for millions of people worldwide.

Under which name shall we store your answers? (Enter your name or Remain Anonymous)

On which parts of your body white skin patches are located?

Scalp
In the Mouth
Back
Wrists
Genitals
Ankles
Eyelids
Neck
Arms
Hands
Buttocks
Feet
Nostril
Chest
Armpits
Fingers
Legs
Toes
Lips
Stomach
Elbows
Hips
Knees
Grey Hair, Eyebrows, Eyelashes, Beard
Not sure

Your white skin patches were first noticed at the age:

0-5 Years
6-12 Years
13-20 Years
31-40 Years
41-50 Years
21-30 Years
51-60 Years
61-70 Years

White skin patches started as a result of -“ check every cause which you may suspect

Inherited from parents
Emotional distress
Medication side-effect
Vaccination
Autoimmune disease
Light and phototherapy
Physical skin damage
Sunburn or occupational sun exposure, such as field work or beach patrol
Occupational radiation exposure, such as at high altitudes, or during frequent air travel

At inception it was

A quick, short burst early after onset, then not too much spreading or
A slow, progressive white skin spreading over several years

Total area of white skin patches takes now

Less then 25%
26-50%
51-75%
76-100% of my body

In the past 6 months total area of your white skin is

Expanding
Contracting
Has no noticeable change

When did you see positive long-lasting effect on white spots of any treatment?

After 1 month of treatment
After 3 months of treatment
After 6 months of treatment
After 1 year of treatment
Never
Not sure

Which treatment was most effective? Tick every treatment that worked and did not work for you.

Internal treatment

Affecting immune system

Worked
Didn’t work
Didn’t try
No effect

Antimicrobials

Worked
Didn’t work
Didn’t try
No effect

Genetics / Molecular

Worked
Didn’t work
Didn’t try
No effect

Hormonal

Worked
Didn’t work
Didn’t try
No effect

Steroids

Worked
Didn’t work
Didn’t try
No effect

Vitamins

Worked
Didn’t work
Didn’t try
No effect

Traditional medicine

Worked
Didn’t work
Didn’t try
No effect

Food supplements

Worked
Didn’t work
Didn’t try
No effect

External treatment

Pseudocatalase

Worked
Didn’t work
Didn’t try
No effect

Melagenina

Worked
Didn’t work
Didn’t try
No effect

Piperine

Worked
Didn’t work
Didn’t try
No effect

Steroid creams & ointments

Worked
Didn’t work
Didn’t try
No effect

Tacrolimus / Pimecrolimus

Worked
Didn’t work
Didn’t try
No effect

Vitamin D analogues

Worked
Didn’t work
Didn’t try
No effect

Placental extract

Worked
Didn’t work
Didn’t try
No effect

Traditional medicine

Worked
Didn’t work
Didn’t try
No effect

Light treatment

Sunlight

Worked
Didn’t work
Didn’t try
No effect

Laser

Worked
Didn’t work
Didn’t try
No effect

PUVA

Worked
Didn’t work
Didn’t try
No effect

Surgical treatment

Intra-lesional steroid injections

Worked
Didn’t work
Didn’t try
No effect

Micropigmentation

Worked
Didn’t work
Didn’t try
No effect

Pigment cell transplants

Worked
Didn’t work
Didn’t try
No effect

Skin grafting

Worked
Didn’t work
Didn’t try
No effect

Dear Volunteer, we are almost done. Answers to these questions are equally important to our research.

Which of the diseases are common among your parents?

Vitiligo
Diabetes (Type 2)
Lupus
Thyroid
Rheumatoid Arthritis
Addison's Disease
Diabetes (Type 1)
Pernicious Anemia
Alopecia Areata

Your eye color

Amber
Blue
Brown
Gray
Green
Green
Hazel
Red
Not sure

Your natural hair color

Brown hair
Red hair
Black hair
Grey and white hair
Blond hair
Auburn hair
Not sure

Your skin type

Type I: Pale white skin, blue ⁄ hazel eyes, blond ⁄ red hair
Type II: Fair skin, blue eyes
Type III: Darker white skin
Type IV: Light brown skin
Type V: Brown skin
Type VI: Dark brown or black skin
Not sure

Your year of birth

Your country of birth

Your gender

Male
Female

Your ethnic group is

White / Caucasian
Native American / First Nations
Asian
Not sure
African-American / African
Indian / Pakistani
Mixed Race
Hispanic
Middle – Eastern
Other ethnic group

Your occupation is

School
Clerical or Sales
Home Duties
Professional or Technical
Laborer
Retired
Tradesman

What are your monetary costs of treating vitiligo to date (US$)?

Nothing
Under $50
$51-500
$501-$1,000
$1,001-$5,000
$5,001-$10,000
More than $20,000
Not sure

Please indicate your areas of interest

I am interested in sharing my knowledge or my story about vitiligo
I am interested in getting regular news and updates from the Vitiligo Research Foundation

My email address


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Become a contributor

The non-profit VR Foundation accepts a variety of contributed material on vitiligo, melanoma and pigmentary disorders for possible inclusion on the website www.Vitinomics.net.

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